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by: Maureen D. Mayes  List Price: $28.00 Amazon.com's Price: $16.30 You Save: $11.70 (42%)Prices subject to change. Availability: Usually ships in 24 hours
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Binding: HardcoverDewey Decimal Number: 616.544 EAN: 9780195169409 Edition: 2 ISBN: 0195169409 Label: Oxford University Press, USA Manufacturer: Oxford University Press, USA Number Of Items: 1 Number Of Pages: 224 Publication Date: May 01, 2005 Publisher: Oxford University Press, USA Studio: Oxford University Press, USA Related Items:
Browse for similar items by category: Click to Display Editorial Review: Product Description: The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation Average Rating:
 Rating:  - The Scleroderma BookThe book was recommended to me and turned out to be as good as promised. An excellent resource for a basic, easy-to-understand-by-a-lay-person description of scleroderma, including its symptoms, variations, possible treatments, what to expect. My daughter was recently diagnosed with the disease and our family is gathering as much as information as possible to know what it is and how deal with it. Rating: - Disease Specific Information Easily understood by PatientsSome books about scleroderma are clearly written with the medical community in mind and are way to technical for the average person. This book is directed to the average person and wrote in a way that can be easily understood by those who do not have medical experience. I highly recommend this book to every person with scleroderma and to ever person that is interested in learning the facts about this disease. Get your copy today! Rating: - comprehensive and clearly writtenAs a nurse practitioner, I felt that the info in this book was very comprehensive... I also felt that the language was well written in commonly-used descriptive terms, so that any lay person could also understand the content. Very helpful info and practical advice. Rating: - A must have for the newly diagnosed.Before this book my husband and I felt lost trying to find answers. It answered all of our questions from what lab work needed to be done to why I might be having certain symtoms. I even recommended this to my Docter to tell his other patients about. This is a must for everyone diagnosed and family alike. Rating: - Highest Endorsement from International Scleroderma NetworkAs President of the International Scleroderma Network (www.sclero.org), this is one of my favorite books to recommend for all scleroderma patients and their family and friends. Dr. Mayes is a world leader in the field of scleroderma and her clinic is a member of the international Scleroderma Clinical Trials Consortium (SCTC). Moreover, Dr. Mayes is an extremely popular speaker at scleroderma events, due to her clear, friendly, and down-to-earth style. I have met her, and ... Read More 
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