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 : My Heart vs. the Real World: Children with Heart Disease, In Photographs & Interviews

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Binding: Hardcover
Dewey Decimal Number: 618.9212
EAN: 9780879697822
Edition: 1
ISBN: 0879697822
Label: Cold Spring Harbor Laboratory Press
Manufacturer: Cold Spring Harbor Laboratory Press
Number Of Items: 1
Number Of Pages: 203
Publication Date: February 01, 2008
Publisher: Cold Spring Harbor Laboratory Press
Studio: Cold Spring Harbor Laboratory Press




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Editorial Review:

Product Description:
My Heart vs. the Real World is a photo documentary volume that explores the lives of children with congenital heart disease (CHD) through striking black-and-white photographs and interviews with subjects and their families. Ten chapters each spotlight a single child and in an additional chapter, the author writes about his own experience of growing up and living with CHD. The images and personal accounts reveal how, compared with someone healthy, a chronically ill child develops adult attitudes in a much different way. These are stories of how CHD patients and their families cope with and overcome extraordinary obstacles and learn about themselves during the process. My Heart vs. the Real World is sometimes funny, sometimes sad, always thought-provoking, and altogether human.



Customer Reviews
Average Rating:  out of 5 stars

Rating: 5 out of 5 stars - Inspiring...
I recently bought this book out of curiosity really. My baby was recently born with Transposition of the Great Arteries, VSD and PS. This book allows me to take a look inside the lives, a voyeur if you will, of children growing up with CHD. It is inspiring and gives us "new" parents in the heart community hope of seeing our babies grow and flourish. Max Gerber has put into pictures and words exactly what heart parents are looking for to dream the dream of seeing their children progress and thrive! ... Read More



Rating: 5 out of 5 stars - This is "Heart Rendering" Photography ~ And... a "MUST BUY" for you and your family. Thanks Max for your expertise work!
Hi, I am "A Mom with a thirst for truth & knowledge"...

This book is a great book of photography and excerpts from each child and family. It highlights children growing up with congenital heart disease (CHD). Their personal accounts reveal their true feelings and by sharing their personal experiences, have inadvertently shown others how they have handled their own lives through extraordinary situations. These children and their families are an inspiration through their bravery and willingness ... Read More



Rating: 5 out of 5 stars - Amazingly beautiful
Wow........I got this book for my almost 10 year old son. He has TOF/DORV, had tons of complications, ending up in PICU for a year and emerging with lots of "accessories" including a trach, ventilator, oxygen, gtube, pacemaker and nurse 24/7. He has been without those lovely things (except the pacer) for many years now, but is starting to come to the realization that his life is different than many of his friends. Not tons different, but different. He has loved Camp Del Corazon, and we got this for him to ... Read More



Rating: 5 out of 5 stars - beautiful and moving
this book is stunningly photographed and full of moving personal stories. it's inspiring and real. an utterly wonderful book.



Rating: 5 out of 5 stars - Transcending
Not knowing anyone affected with Heart Disease, I approached this book from a photography standpoint. Taken by the photographs, I sat down and read the book and was immediately drawn in.

Woven into this book is Max's story. He is in the book, in words and pictures, telling his story of being a kid, like the kids in the book, growing up with heart disease. He tells us, his parents tell us, about his childhood with words and pictures and then gets into the stories of the kids in the book.

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