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Binding: PaperbackEAN: 9780970167101 ISBN: 0970167105 Label: Kilpatrick Publishing Company Manufacturer: Kilpatrick Publishing Company Number Of Pages: 172 Publication Date: September 01, 2000 Publisher: Kilpatrick Publishing Company Studio: Kilpatrick Publishing Company Related Items:
Editorial Review: Product Description: Myositis refers to inflammation of the muscles ("MYO" means muscle and "ITIS" means inflammation). Myositis is a mystery disease in several diseases: Polymyositis (PM) means inflammation of many muscles. Dermatomyositis (DM) means inflammation of many muscles and skin Inclusion Body Myositis (IBM) means inflammation of many muscles with "Inclusion" (abnormal protein deposits) and vacoules (holes) in the muscle cells and fibers. Virtually 95% of physicians are unlearned about this chronic, lifetime muscle disorder. So little information is given to the patients after they have finally been diagnosed, but offered no further information about the future expectations might be. The four Myositis diseases have individual case reports from patients with the diseases, telling how the disease affected them, their families, their working and the dark future that no physician had told them would happen. The Myositis patients are telling their stories to help newly diagnosed Myositis individuals learn more about the disease, what to expect. Several Neurologists who have read the stories have said the book will be a great teacher to the medical profession because the stories give a glimpse into the daily life, the philosophy on the mind and inner workings of the patient's body; whereas the medical profession can only ascertain what they learn through diagnostic procedures. Average Rating:
 Rating:  - Review of Coping with a Myositis DiseaseThis was a very interesting, although somewhat disheartening, book. It is a group of case studies told by the patients who suffer from myositis. Often the cases seemed quite hopeless, therefore, it was hard for someone also suffering the disease to have much hope. The book also should have been edited for grammatical mistakes. Rating: - A fantastic insight into Mysosis for a DM suffererThere are very few publications out there providing supporting information for Myosis sufferers. This one provides a great insight into the disease as well as the specific variations ie (DM). The case studies are particularly interesting and useful. It's great to see how others are coping with their disease and how most are recovering well. This is an American publication, I have not managed to find any UK publications for this condition. Rating:  - Myositis Patients Beware!As a person diagnosed with Signal Recognition Particle Antibody Syndrome, a very rare and agressive type of Polymyositis, I feel compelled to "warn" Myositis patients about this book. Yes, it does make patients realize others are experiencing the same debililitating symptoms you are; however, I found this book to be VERY NEGATIVE. It doesn't list the positive aspects of this disease today--there is hope with ongoing research; knowledgeable specialists; medicines available to relieve symptoms; ... Read More Rating: - Incredibe View of Myositis from the PatientsIn two medical training centers, I first saw the book, "Coping with a Myositis Disease." The real life stories of those suffering from a Myositis disease was written from the heart of the writers, in their own words without editorial interference. The book can not be praised enough for the benefits especially for new Myositis patients. No wonder the book has a five star rating and first place Best Seller of Myositis books. Finally, Mr. Kilpatrick was able to capture ... Read More Rating: - Comments of Contributor (DM)When I gave my story to be included in this book, it was explained to me that it would be in my own words. This made me a little nervous and I took pains to use proper spelling and grammar. Well, my published story in the book contains numerous spelling and grammatical errors which were not made by me. This is very distressing for me. I must not be the only one, because this seems to be a pattern throughout the book. Anyway, all this aside, this book is a must have for anyone diagnosed with myositis. ... Read More 
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