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Binding: PaperbackDewey Decimal Number: 616.742 EAN: 9781569244005 ISBN: 1569244006 Label: Da Capo Press Manufacturer: Da Capo Press Number Of Items: 1 Number Of Pages: 320 Publication Date: July 31, 2006 Publisher: Da Capo Press Studio: Da Capo Press Related Items: Browse for similar items by category: Click to Display Editorial Review: Product Description: Carol Zapata-Whelan describes her son's struggle with the rare genetic disease Fibrodysplasia Ossificans Progressiva (FOP), focusing on the time of diagnosis at age nine to his first year in college (he matriculated as a pre-med student at the University of California, Berkeley, in September 2004). Zapata-Whelan illustrates how this struggle with FOP has shaped and strengthened her family, and how, as a mother, the experience has taught her to put her trust in the universe, and live life one day at a time. Through her son's remarkable grace and strength in dealing with his disease, she has learned that an unexpected encounter with suffering can be a blessing as well. Through flashbacks and anecdotes, Zapata-Whelan leads the reader through the ups and downs of dealing with FOP in everyday life, while offering insight, hope and guidance throughout. Average Rating:
 Rating: - Human Strength In The Face of Overwhelming Odds Carol Zapata-Whelan has a compelling story to tell, but the author jumps back and forth between time and place in a very confusing manner, talking about the struggles to get her son into college, back to the past, when she was dealing with one chronically ill child and just beginning to suspect that her second child was also stricken with the same genetic disorder, a debilitating disease for which there is no cure. While the book meanders way too much in some places, perhaps that is ... Read More Rating:  - A compelling story, a wonderful family, a rambling bookI want to say first off I very much admire people like Carol Zapata-Whelan, who took on her son's rare genetic disease head-on, and in the process certainly helped many others with the same disease and similar ones. I know a child with the most severe form of OI (Brittle Bone Disease) and I admire anyone working for cures to genetic bone disorders. However, I wish the book had not strayed quite so much from Vincent's story. Perhaps the author could write other books, ones about her ... Read More Rating: - Wonderfully written, heartfelt, humorousCarol is a wonderful writer who tells an inspiring tale about her family's incredible journey through a relatively unknown disease. Her words are encouraging. If you've ever dealt with a chronically ill child or need help in triumphing over adversity, you'll love this book! Rating: - A Magic StoryThis book is a chant to life. The basic values of humanity,love, honesty, compassion and courage are to be found in Carol Zapata-Whelan's story. Knowing from the outset that she is fighting an unknown adversary who changes faces and steps like a demon, blinding his oponent, Carol shows grit from the opening of Magic Mountain up to the end of this dramatic narrative. Rating: - Finding Magic Mountain: Life with Five Glorious Kids and a Rogue Gene Called FOPAmazing read. Couldn't put it down and yet I wanted it to last. Bought 3 more copies and gave as gifts because the lesson was so important. 
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